Ileostomi partner

Learn more about slowing down ileostomy output to avoid dehydration and other concerns as well as causes and treatment options that cover all bases. Your partner can help make you feel more comfortable and reassure you that you are just as attractive with an ostomy. Take steps before intimacy to feel more confident. Empty and clean your ostomy pouch. Check the seal to make sure it's tight. Use an opaque pouch or try a pouch cover. Lingerie and cummerbunds made to conceal a pouch or hold it ... An ileostomy is a surgical opening in your abdominal wall. The ileum, or end of the small intestine, is passed through this opening and stitched into place. If you have a large intestine problem ... Partner Promotions Employee Engagement Partners Against Cancer. Corporate Partners CEO's Against Cancer Sports Alliances Brand Ambassadors Community Partners About Us. At the American Cancer Society, we’re on a mission to free the world from cancer. Until we do, we’ll be funding and conducting research, sharing expert information ... Attend a local ostomy support group if there is one in your area. You can go by yourself, or take a spouse, family member, or friend with you. It may help to talk to others who have ileostomies and share ideas. If you have a partner, it can help for both of you to talk with other couples about how they live with an ileostomy. 2. Dinner can be a challenge. Some ostomates are strict vegans. Others have to eat extremely low-fiber diets. Maybe your partner can only have one bite of egg if the moon is full with a side dish of pure rainwater — or maybe they eat exactly the same menu as you. What I can or can’t eat can be strange, and it can change on a whim. Assure your partner that she won't hurt your stoma or damage your pouch when you're together. It's also wise to have realistic expectations when it comes to sex. After surgery, there can be pain ...

Crohns and relationships (warning: sappy!)

2020.08.16 23:23 nngbrn Crohns and relationships (warning: sappy!)

I was in a long-term relationship with my college boyfriend for over 2 years. He was in my life during one of my most aggressive Crohn's episodes of my life. From freshman year to the beginning of junior year, I went to the E.R. every semester, had surgery, had a partial obstruction, and had some other complications from surgery.
My boyfriend was always there for me. He would take an Uber to come visit me everyday at the hospital- something my best friends didn't even do. He would stay for a while and do his homework or would pick a movie for us to watch. He waited with me during an E.R. trip and was awake the whole night until 8 am, even though he had classes to attend the next day. One of the sweetest memories I had was when I told him not to come the day I had surgery because I knew I would be in so much pain and would be out of it, but he still came and he would kiss my forehead when I was in pain.
After all these hectic times, he found my surgery scars beautiful. He found the wounds and the ileostomy to be fascinated, even though I thought they were absolutely ugly and horrible. He used to do my Humira injections for me and would later do my vitamin B12 injections. He understood my numerous trips to the bathroom and would joke with me about them (which took away the embarrassment). He would come to my dorm when I felt sick and would just sit there with me.
I am writing this post because we are surprisingly no longer together. Long distance caused by COVID-19 (he's from China) I think took a toll on him. Also, junior year was where I was the most healthiest and working on my mental health- yet it was also the year where we bickered the most. But I had hope since we'd always find a way to resolve things; and even though we fought, it never took away from how I viewed him as my partner.
I am scared I won't be able to find someone like him again. I feel like I've built up another wall, and don't want to have to explain my whole Crohn's history to someone else again. What are your experiences with dating with Crohn's? How do you get through the embarrassment of having to explain your condition all over again? More importantly, are all partners usually this supportive?
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2020.08.10 21:52 DrMDMA-MD Three Years...

Three years of constant doctor's appointments, hospital visits and surgeries. Three years fighting to try keep my mental state up and dealing with not being able to stay fit and active.
Three near death hospital admittances to critical care, six months on a loop of pain medication and inaction, twelve blood transfusions, one emergency surgery due to suspected perforation. One ileostomy operation, one sub-total colectomy, and several kidney stents to manage a freak complication. Recovering from an opiate dependency I've reached the end.
Today. I had my last operation to remove the stent. My kidneys are fine and I'm feeling something I haven't in a long time. It's almost unfamiliar it's been so long, but I think it's relief? Maybe hope or optimism? All I know for sure is that I don't have to go and get the stent exchanged under general anaesthetic again in three months. And I know I'll be able to exercise again pain-free.
I know I can close this chapter and move on to my next one.
For anyone out there going through some shit. However dark it is, it's temporary. You will get through this.
Thank you to this sub for giving me strength before I went into the more serious operations, and managing my dark rants and anxieties. Without you and my loving partner, I really think I would have cracked up.
Much love. X
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2020.07.18 18:45 vegetaisover9000 How do you get back into dating with a bag?

Hi all, 25f with ileostomy (maybe typo) and the thought of telling a potential future partner that I have a bag seems terrifying. Single for 3ish years and I’ve tried dating but most were fizzers (they didn’t know I had a bag). So I kinda gave up. Not to mention even fizzers can worsen ones mental state when it happens one after the other. I know if they seem disgusted by the bag it’s not worth getting to know them but how can you know if they will be or not. How long do you think one should wait before you tell someone you’re dating you have a bag? I may just be in my mind too much but it’s hard to see a positive outcome sometimes.
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2020.07.12 19:34 Baron_Gong Got my life back!

So I turn 32 today! I’m in my second year of having my ileostomy and I am finally able to live the life I thought I had lost. The ten plus years of severe colitis and constant hospitalisations really took its toll on me. I just wanted to thank this community for the support and information I’ve been able to find here. Really helped me get though the tough times. I went back and finished my University degree last year. I found a full time job at my local hospital and have been with my partner for over half a year now. All things I didn’t think I’d ever have again.
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2020.07.07 08:19 Hunterthemokeking Girl problems I guess

Aight I'm 20 year old Male I've been noticing that when I bring up that I have an ostomy to a potential partner the majority of them never talk to me again. I'm starting to lose confidence since my last relationship ended poorly. Am I bringing it up in the wrong way like I try to be like hey I have a ileostomy dont worry about just something you should know. Casually and move past it. If they have questions I answer them but no one seems to really understand I dunno just needed to vent I'm tired of feeling rejected.. I dunno yall have a wonderful night
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2020.03.13 08:37 Love_you_jelly_much Crohn's+Ileostomy+can I be a good dad?

Hi, just looking for a little perspective. My partner is scheduled to have an Ileostomy, we are also due to have our first baby.
He feels guilty, doesn't think he can be a good father compared to those without an Ileostomy. He's worried he won't be able to hold the baby, play with the baby, have the baby anywhere near the stoma. As the child grows, he wants to run around, and goof about, without feeling limited.
His father was unwell, from a lung condition, so I don't think he wants our children to miss out. What support and advice can I give him?
I think he'll be the greatest dad. But I want to share stories of others with him. To give him hope.
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2020.03.13 08:27 Love_you_jelly_much Ileostomy + can I be a good dad?

Hi, just looking for a little perspective. My partner is scheduled to have an Ileostomy, we are also due to have our first baby.
He feels guilty, doesn't think he can be a good father compared to those without an Ileostomy. He's worried he won't be able to hold the baby, play with the baby, have the baby anywhere near the stoma. As the child grows, he wants to run around, and goof about, without feeling limited.
His father was unwell, from a lung condition, so I don't think he wants our children to miss out. What support and advice can I give him?
I think he'll be the greatest dad. But I think the perspective of those who have done it will have greater value.
Edit: Thank you all sooooo very much for sharing your experiences and for continuing to add them on! I shared the link with my husband, and he quietly read them all, he's a stoic one. The long hug, and the few man tears that followed, tell me that he's understanding that reality and what he fears are two different things.
I love him very much and want him to know what I know, that he'll be a great dad. And your messages are helping him get there. Thank you!
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2020.03.12 08:33 GonerrKidd AITA for not understand a potential “joke”

Yesterday we (mum, partner and myself) had to go up to a hospital in the city to see a stoma nurse as my closest hospital’s stoma nurse refuses to see anyone without an appointment and she’s booked out for like over a month. The issue I have/had going on basically hasn’t let me sleep over a week (unless I’m sitting upright and it’s only a nap at best) and it’s getting extremely hard to manage even for someone whose had it over 11 years. To clarify I have an ileostomy (part of my small intestine is on the outside of my stomach)
So as I mentioned we had to go to a city hospital and since we don’t have a car we have to take multiple busses and there’s like a billion busses going different ways in the city. A bus pulls up that we THINK might go to the hospital so my mum goes up to the driver and asks “hey do you go to (hospitals name)”
He replies with “no. But this service does”. Now this is super confusing to us all so my mum asks for clarification “so you are going to the hospital?” And he repeats with “No I’m not. But this bus is do you want this service?” Mum is super confused and looks to the other people waiting in line (this is holding them up and in the city that’s like a crime to some people) but they’re also frustrated with him.
So mum asks again “so is this bus going to the hospital or not?” And he finally says “yes it is” or something like that. Mum’s super frustrated and gets on with “why didn’t you just say that” and as I’m stepping on he calls out to her “What? You don’t know the difference between a person and a bus??”
For the rest of the ride my mum was super frustrated mocking what he said to her and calling him an idiot (not loudly just to me and maybe other passengers heard).
So..Are we the asshole for not understanding what he said or he is the asshole for not just saying yes?
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2020.02.16 09:16 ClutzyMe 37F Blood in Urine....again.

37F, 5'7", 160lbs. No known illnesses, not on any medication. Non-smoker. Not pregnant.
X-post from AskDoctorSmeeee
I tend not to see a doctor unless I'm practically dying, but I've been experiencing, what I assume, is a recurring UTI or bladder infection. So I'm wondering if this warrants a trip to the doctor in case it is serious. It's been about 6 months to a year I guess since I started noticing it happening. I think I've had about 5 "infections" that I can recall.
At first there was no blood, just some weak stream followed by painful burning sensation during urination and persistent feeling of having to pee/bladder fullness, even after I just emptied my bladder. It would go away on its own after a few days to a week without treatment.
The last 2 to 3 times now there is visible bright red blood in my urine. I also get some urgency when I have to pee now.
I don't have any other symptoms such as back pain, fever, fatigue or anything else of note.
I do not have any STI's and have been with the same, monogamous partner for many years.
I'm not on any medication and I have not changed anything about my diet recently.
The only health issues I've had in the past was Ulcerative Colitis, which did not respond to treatment and resulted in sub-total colectomy and I have an ileostomy.
The earliest I'd be able to see a doctor is Monday, unless this is an emergency room situation?
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2019.11.25 04:06 Its_Jessica_Day Anyone Meet Your SO After You Got Your Ostomy?

I spent most of my adult life sick with Crohn’s, so now that I have my ileostomy, I finally feel well enough to date. Dating is intimidating enough for “normal” people, but having an ostomy really makes me nervous to date. I am so happy and grateful that I have my ostomy and am no longer sick, but I understand that a date or future partner may not see it that way. They may just look at the pouch and think “this is not what I signed up for.”
If you met your partnespouse AFTER your surgery, tell me how you broke the news to them about you having an ostomy and what they said/did in response. I am so worried I’ll disappoint people. I feel like time is running out and I don’t know how to put myself out there confidently. I’d love any thoughts you guys have.
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2019.10.15 09:13 nitisha_sharma29 Ostomy/Stoma Care Market Analysis Market research to Register Exponential Compound Annual Growth Rate Through 2017 – 2024

Global ostomy care market is anticipated to reach USD 4.1 billion by 2024. Ostomy, also known as stoma is a surgical procedure that involves the removal of diseased portions of the urinary or gastrointestinal system and formation of an artificial opening in the stomach or abdomen to allow the elimination of body wastes. Colostomy, Ileostomy, and Urostomy are the three types of ostomy. In the colostomy, the opening is made from the large intestine to the abdominal wall so the feces can bypass through the anal canal. In Urostomy, the urine passes straight into a stoma bag and thus bypasses through urethra. In Ileostomy, the damaged part is removed from the ileum and diverted to an artificial opening in the abdominal wall.
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Some of the key players in global ostomy care market include Coloplast, ConvaTec Inc., Hollister Incorporated, Alcare Co., Ltd., B. Braun Melsungen AG, BAO-Health, Welland Medical Limited, Marlen International, Nu-Hope Laboratories, Inc., and Flexicare Medical Limited among others.
The global ostomy care market is driven by the rising geriatric population and increased number of ostomy surgeries in bladder cancer, bowel cancer, and inflammatory bowel diseases. Moreover, rising number of patient awareness programs on the use of ostomy products, and new product innovation are some of the key factors responsible for the growth of the market over the forecast period. However, difficult reimbursement climate and increased cost of surgical care are factors expected to stifle the growth of the global ostomy care market through the foreseeable future.
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Accessories remain a very important part of the product offering and are a rapidly growing segment within ostomy care market. The accessories segment of global ostomy care market is further segmented into creams, deodorants, powders & pastes, cleansers, belt, tapes, and others.
On the basis of end user, the global ostomy care market is further segmented into hospitals, specialty clinics, home care settings, and ambulatory surgical centers. In 2017, the home care settings segment is estimated to dominate the global ostomy care market.
Table of Contents: 1. Overview and Scope 1.1. Research goal & scope 1.2. Research assumptions 1.3. Research Methodology 1.3.1. Primary data sources 1.3.2. Secondary data sources 1.4. Key take-aways 1.5. Stakeholders 2. Executive Summary 2.1. Market Definition 2.2. Market Segmentation 3. Ostomy Care Market Insights 3.1. Ostomy care– Industry snapshot 3.2. Ostomy care -Ecosystem analysis 3.3. Ostomy care market dynamics 3.3.1. Ostomy care– Market Forces 3.3.1.1. Ostomy care Market driver analysis 3.3.1.2. Ostomy care Market restraint/challenges analysis 3.3.1.3. Ostomy care Market opportunity analysis 3.3.2. Industry analysis - Porter's five force 3.3.2.1. Bargaining power of supplier 3.3.2.2. Bargaining power of buyer 3.3.2.3. Threat of substitute 3.3.2.4. Threat of new entrant 3.3.2.5. Degree of competition 3.3.3. Ostomy care market PEST analysis, 2017 3.3.4. Value Chain Analysis 3.3.5. Ostomy care Industry trends 3.3.6. Prevalence of IBD 4. Ostomy Care Market Size and Forecast by Product
And continue……
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The overall market is segmented on the basis of product type, end user, and region. Based on the product, the global ostomy care market is further categorized into bags and accessories. The bags segment is further sub segmented into surgery type, usability, shape and system type. The surgery type is further broken down into colostomy, ileostomy, and urostomy. Among the surgery types, colostomy surgery is expected to exhibit strong growth followed by Ileostomy and urostomy. By usability, the bags are segmented into close end and drainable bags. On the basis of system type, the market is segmented into one-piece systems, and two-piece systems.
By geography, the global ostomy care market is segmented into five major regions such as North America, Europe, Asia Pacific, Latin America, and Middle East & Africa. Europe is estimated to have the largest market share for ostomy care market in 2017. This region is dominated in ostomy care market due to increased prevalence of inflammatory bowel diseases. In addition, increased patient awareness programs continue to drive penetration and market growth in this region.
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2019.10.11 14:27 zbir84 Reverse colostomy or stay with a bag for life?

Hello,
A bit of a background: We live in the UK and my partner (35F) was diagnosed with rectal cancer this March. She had a reversible colostomy done to help with the treatment which she finished in August (radiotherapy and light chemo). The treatment partially worked, meaning the tumour has shrank and the doctors are ready to proceed with the surgery to remove it. They said they will do the surgery, which involves removing the tumour and a section of the bowel, but they will need to put the ileostomy bag in place of the colostomy bag for the next 3-4 months after the surgery to help with the healing process. That can then be reversed and the bowel can be connected. Unfortunately that will mean she will have a limited bowel functions (difficult to say to what extend I guess) but that will mean more frequent trips to toilet and making sure you are aware where the toilets are etc. The other option is to leave the colostomy bag, but that would then be permanent (irreversible I guess). They didn't really recommend one option or another, but were slightly leaning towards the reversal. However my partner had a really good experience with the colostomy so far (if you can say that) and actually got used to it. She never had any problems with it, no leaks, no hernia, etc. We are now thinking of what decision we're going to make. On one hand she can reverse it but then face the difficulty with frequent toilet trips, more complex surgery and also additional surgery to reconnect it), on the other hand staying with a bag for life in that age might be challenging (although living with it for 6 months so far has been a positive experience). I guess I'm not really asking for an answer but maybe someone has faced a similar dilemma and can share some experience?
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2019.07.22 06:52 abezthevap0r My father has been suffering...

This is quite a long story so please bare with me. I will post a TLDR at the end.
My father was diagnosed with colo-rectal cancer in June 2018. The first hospital he was at classified it as early stages and he would only require surgery after his colonoscopy. The problem my father had was that he was going to have to have an ileostomy bag. He wanted to completely avoid it if he could. So with that in mind, he decided to go to another hospital on the advice of a friend of his. This surgeon doctor was one of the top surgeons in the area (according to everyone you spoke to about).
New hospital seemed to have a great plan. This surgeon assured my dad he wouldn’t need a bag and he followed a new advanced way without opening my dad up except for three microscopic holes. We were excited. But first, he had to go thru chemo and radiation. He did it for 6 weeks. It was tough. Surgeon told him he needed to wait another 6 to do the surgery. And so we waited.
October 16 2017 was the date of the surgery. They did the resectioning and everything seemed great. We were happy. Until 2 days later, my dad started feeling excruciating pain in his shoulders. Turns out the resectioning came loose and he was bleeding internally. And so the next day, he went back into surgery. The surgeon was very apologetic. We were just pleased they found the issue and fixed it.
My dad carried on with life for about a month and a half. He suddenly felt terrible pain in his butt. It was a worrisome time. They took him for a CT scan and they discovered an abscess had developed. The surgeon referred him to a hyperbolic chamber (he is diabetic and doctor felt this was the best). 38 treatments later, my dad had enough. So the surgeon suggested to go inside and clean in and around the abscess. And so another procedure.
The time now is February. My dad is still in really bad pain. He started falling it would hurt so bad. So back to the surgeon we went. Finally, surgeon said it’s time for an ileostomy bag. Dad didn’t care and neither did any of us. Whatever it took to get my dad feeling better and off the pain medication so he can just function. And so another procedure.
One month later, he went to the emergency room because of pain. Surgeon came and suggested to go back in and clean in and around the abscess again. By this time, I started having doubt about this doctor. He would take frequent vacations as well so he wasn’t always available. I asked my dad to please go to another hospital and seek a 2nd opinion. But he always pushed the idea away. He would tell me “no I’ve done everything here and the surgeon knows what he has done to me and it would take forever to get into this other hospital” (this hospital is one of the top cancer centers in America). And so another procedure.
Many nights in horrible pain and not moving from the couch, enough was enough. We went back to the ER. The surgeon was on vacation (again). So his partner came and said let us do another clean up. This time, she put a catheter tube up his anus (literally). She said it was up to the abscess and would drain it. My dad couldn’t even sit. The surgeon was set to return that Monday (he had this procedure Friday) and my dad also had an appointment with him that day. Well...Monday came and he was a no show. My dad took this as a sign. He was finally fed up.
I got him into the other hospital I spoke of above. And I am lucky to have the connections that I had to make it happen. My dads body was shutting down. His testosterone was 7!!!!! His iron and B12 was so low the doctors had never seen such a level before. His kidney levels were high. Everything was giving up. Thankfully now we have him in the right place.
The doctors said the resectioning the surgeon did was completely loose. The infections we were told by the surgeon were because of radiation but the new hospital said that’s not true. They kept my dad for a week and ran so many tests. The other surgeon and doctors didn’t even bother to do any of this. I feel like they neglected him to just let him die.....
My dad has contacted multiple attorneys and they won’t take the case. They say they have conflict with the surgeon. I’m assuming these attorneys are also representatives of the hospital. So we are searching and searching and trying to find a good attorney to take on the case. We have all his medical records and everything...
My question is does my dad have a case against this surgeon for negligence? The fact they didn’t check for any infections and claimed everything was because of radiation when in actuality it was because of their work with the resectioning being loose which developed the abscess...it doesn’t make sense to me. My dad had up to 7-8 CT scans and you’re telling me they couldn’t see?!? I can’t believe this at all. And they didn’t check for any infections either? Why?
Thank you for reading if you read up till here. My father is scheduled to have his rectum completely removed next week and hopefully this will make him pain free forever. But he will have the ileostomy bag for the rest of his life. We don’t care. Just want dad to feel better and not be miserable ever again.
TLDR: dad went thru hell, we believe it’s negligence based of new hospital information. Do we have a case?
Edit: We live in Alabama.
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2019.04.15 06:37 adoseoftruth 41 [M4F] Internet/anywhere Just looking to chat and connect.

How long can you go with nothing left? When and where is the breaking point? In the last 11 months, I’ve had 5 operations on my stomach and gastrointestinal region and in that time, I have suffered pain and discomfort beyond anything I have felt before; and this is coming from a guy who has had heart, lung, testicular, bone, and a major joint reconstruction previous to the latest round of health problems. I’ve also been dead for 12 minutes. So, there’s that. And where is the breaking point… when do I snap? When is enough?
Two and a half weeks ago, I had my 5th and (hopefully) final surgery. 15 days ago, my g/f of 2+ years walked into my hospital room and asked when the last time I had pain medication and, when informed about 14 hours earlier and I was trying to manage without narcotics, she asked if I’d like her to get the nurse to request some pain medication. After telling her no, she shrugged and told me that she could do this any longer and couldn’t watch me suffer and heal again and that it was too much for her. Seriously, I will be back to life in about 6-8 more weeks. 6 months ago, after my 4th surgery when they took 20% of my bladder, 3 feet of intestines, and 18 inches of bowel and put a colostomy and ileostomy in place, I could see saying enough was enough. But, to get to the end, to see me through all of it just to leave then, without the truth or a real goodbye. Dropping off my key the next day, without a word, just…”I can’t, I’m sorry,” and then walking away. I could hardly get out of bed, let alone give chase.
Where do I break? When? Is it now? Two weeks later, laying in my apartment alone, as I still struggle to get down the hall to make myself soup or something simple to eat. I rely on delivery for groceries and friends (all male save for one female who has a partner) to help as needed. A good friend brought his wife over yesterday (I was his bet man, so we are close) to help with laundry and make a few meals for me to get me through the week until (hopefully) I get the strength to cook for myself in some fashion that is more than a bowl of soup or easy pasta with canned sauce.
Alone. That is a word I think to myself often. It’s a hard word to think. I know it won’t be forever, I can intellectualize that, but it doesn’t make it any easier. I cast into darkness and wonder… What, if any, voice will materialize into an orange envelope. What will I find? Who will be there? Where are you from? Near? Far? Half a world away? Can’t wait to find out.
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2019.04.15 06:36 adoseoftruth 41 [M4F] Internet/anywhere Just looking to chat and connect.

How long can you go with nothing left? When and where is the breaking point? In the last 11 months, I’ve had 5 operations on my stomach and gastrointestinal region and in that time, I have suffered pain and discomfort beyond anything I have felt before; and this is coming from a guy who has had heart, lung, testicular, bone, and a major joint reconstruction previous to the latest round of health problems. I’ve also been dead for 12 minutes. So, there’s that. And where is the breaking point… when do I snap? When is enough?
Two and a half weeks ago, I had my 5th and (hopefully) final surgery. 15 days ago, my g/f of 2+ years walked into my hospital room and asked when the last time I had pain medication and, when informed about 14 hours earlier and I was trying to manage without narcotics, she asked if I’d like her to get the nurse to request some pain medication. After telling her no, she shrugged and told me that she could do this any longer and couldn’t watch me suffer and heal again and that it was too much for her. Seriously, I will be back to life in about 6-8 more weeks. 6 months ago, after my 4th surgery when they took 20% of my bladder, 3 feet of intestines, and 18 inches of bowel and put a colostomy and ileostomy in place, I could see saying enough was enough. But, to get to the end, to see me through all of it just to leave then, without the truth or a real goodbye. Dropping off my key the next day, without a word, just…”I can’t, I’m sorry,” and then walking away. I could hardly get out of bed, let alone give chase.
Where do I break? When? Is it now? Two weeks later, laying in my apartment alone, as I still struggle to get down the hall to make myself soup or something simple to eat. I rely on delivery for groceries and friends (all male save for one female who has a partner) to help as needed. A good friend brought his wife over yesterday (I was his bet man, so we are close) to help with laundry and make a few meals for me to get me through the week until (hopefully) I get the strength to cook for myself in some fashion that is more than a bowl of soup or easy pasta with canned sauce.
Alone. That is a word I think to myself often. It’s a hard word to think. I know it won’t be forever, I can intellectualize that, but it doesn’t make it any easier. I cast into darkness and wonder… What, if any, voice will materialize into an orange envelope. What will I find? Who will be there? Where are you from? Near? Far? Half a world away? Can’t wait to find out.
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2018.12.30 13:01 kallekallekalle Hard surgical choice. Advise needed. Surgery or death.

I (29M)have locally advanced rectal cancer resulting from familial adenomatosis polyposis (FAP) and have had a 3 month course of Folfox and then radiotherapy for 6 weeks with more chemo.
I recently went to my surgeons to discuss the surgery that will follow my treatments. I had assumed that my colon and rectum will be removed because of the FAP. However the surgeons have recommended that I have my prostate, my bladder, my colon, my rectum, the bottom five bones of my spine, and the muscle and bone on the inside of my pelvis on the right side. This is all because they can’t get a clearly delimited line between the tumor (at its largest, I have not had my final scans yet following radiotherapy) and my prostate and between the tumor and the pelvis.
This would leave me in intensive care for 3 weeks follow surgery, having to be shifted from lying in my left or right side as to close the wound they create in the surgery they would have to steal muscle and skin from somewhere else on my ass. I would be unable to lie on my back, or sit and have to re learn how to walk (having read testimonials of people who had the same surgery it seems I will never walk properly again let alone gym. I used to be a pretty solid athlete before getting sick).
I would also need a bag for urine ( I already have a ileostomy bag) and would be completely impotent for life and likely unable to climax either.
If I don t get the surgery my doctor said I will likely get remission and die in three to five years.
I do not want to die but also the life that would follow the surgery doesn’t seem like life. My life before was at least two hours of exercise a day. And also I don’t think I would expect my partner to stay with me if I can’t have any real sex life.
I don’t know what to do.
submitted by kallekallekalle to cancer [link] [comments]


2018.12.08 21:55 gastrothrowawayyyy Misunderstood and Hated?

I can't be the only person who experiences these uncomfortable situations in which people completely misunderstand you. Some even dehumanize you. I've had embarrassing situations. Accidents. Long periods where I can't go to work. I've woken up after a scope with the anesthesia wearing off and my once potential employer heard me begging to use the restroom and ostracized me to the rest of a very small community. My ex fiance's family consistently told my ex partner that I was faking it all just to get out of work and that I was a gold digger.
Years later after all the stress it looks like an ileostomy and confirmed fibro says just faking it.
Do you experience undeserved hatred and doubt? How do you handle it? Because it eats at my soul and makes me feel so worthless. I know the things I experience are real and painful. Why do so many people have to put their nose in something they don't understand when it doesn't impact them?
submitted by gastrothrowawayyyy to UlcerativeColitis [link] [comments]


2018.05.11 13:54 mostepicoctopus Weight Loss With Ileosotomy

Hey folks! My partner saw her GI yesterday and was told she needed to lose weight for medical reasons - she carries her weight higher than most women so there’s too much fat around her heart and liver.
I know Crohn’s patients usually have an issue keeping weight on, which she did initially, but since she’s had this second ileostomy she has put on about 40 pounds.
Personally, I know how to make oneself lose weight, but my diet tips and tricks come from anorexia self help boards of the mid 2000s so they’re dangerous and stupid. I have healthy ideas, but based on where her ileostomy is placed I don’t know if she’s getting enough nutrition as it is.
Has anyone here been overweight and had to shed some pounds? Specifically with an ileostomy, how did you do it without compromising your nutritional intake? I also feel like she needs to eat more often than I do.
(For the record, I think she’s beautiful no matter what. But if it’s an issue of health, I’d like to keep her around).
Thanks in advance!!!
submitted by mostepicoctopus to CrohnsDisease [link] [comments]


2018.01.12 21:06 normalcy3 Been dealing with this for almost 10 years

I've had bloody, soft, painful stools for almost 10 years now. It comes and goes, but is never gone for more than a few weeks and can last for months. About 5 years ago I finally saw my doctor about it (I was young...was too embarrassed before) and was diagnosed with just anusitis and was given some topical cream. Needless to say, it didn't help much and the problem persisted. I finally saw a specialist about 3 years ago who just told me to take some metamucil, which helped a bit but didn't solve anything. In the past year it's worsened and I'm passing a lot more blood than in the past - sometimes I'll feel like I really have to go to the washroom and just blood will come out. I just got a second opinion and a referral for a flexible sigmoidoscopy in a few weeks.
From reading online, I'm pretty sure I have some form of ulcerative colitis. My symptoms are pretty much just bloody, soft, painful stools and irritation, no abdominal pain or bloating or anything like that.
I've only really recently started reading about ulcerative colitis and honestly, the more I read the more scared I become. I feel like because I've let this go for so long there's probably going to be some irreparable damage. I'm especially scared of having to get an ileostomy bag, and how my partner will react to it.
submitted by normalcy3 to IBD [link] [comments]


2017.12.02 20:08 deprestomy Anyone else with issues with smell after switching to a new Hollister product (flange/wafer)?

I've had an ileostomy for over 20 years and have always preferred a 2-Piece system. For years I used Hollister 8722 CenterPointLock 1-1/4"Skin Barrier along with Hollister 8812 bags. After being informed that the prices for this model would be increasing in 2018, I began to experiment with some new product samples.
I arrived at a decision to start using Hollister 11202 flanges/wafers with the 18122 bags. While the connecting "tupperware" portion actually protrudes out from the belly much less and is to me as secure if not better in its clasping and leaving me feeling reassured that it won't come apart, I'm unfortunately experiencing a disappointing smell that is making me very self-conscious. I've never had to use a deodorizer and there has not been a change in my diet. It's definitely NOT a LEAKAGE (no "time to change" or rashy feeling)...just more smell after one day (24 hour period and shower). I used to get 4-5 days where with the former products and never experienced smells like this nor did my partner complain of it. I am strongly think I will try to exchange some for my former set up until I find a better solution. Very discouraging to be having to go through this after so many years of stability...especially as I liked the lower profile of this new product. Additionally, I'm single now and would not even attempt dating again until I solve this.
Has anyone else had similar odor issues after switching to a different product?
I will add that I generally have preferred the combo of using Skin-Prep wipes to prepare the skin prior to applying the flange as well as a small amount Stomahesive paste around the ring. I tried the new rings but found them less ideal and expensive in comparison.
Lastly, I'll add that this is not my main Reddit account. I have long struggled with depression, Crohn's, and a personality disorder and so prefer to keep this separate from my more mundane postings.
2017-12-04 EDIT: So I'm beginning to suspect that it's the chemical interaction between the base of this new flange (more plastic-y) with the Stomahesive paste. It seems to cause a ring that weakens the seal and instead of getting a leakage under the flange, it separates the appliance and then begins to seep into the tape (under away from eyesight in both cases...I guess gravity playing a role) causing the odor. I changed last night and am trying the new adhesive rings instead of the past. More expensive...but no choice at the moment until I investigate further.
submitted by deprestomy to ostomy [link] [comments]


2017.09.15 17:14 throwawaybrohomo Telling a new partner about an ostomy?

Hey all.
Apologies if this is a long post. I have a lot on my mind.
I had my surgery in May of 2016, when I was 18 years old. My very first flare-up of UC was so strong and caught by such surprise I was in emergency surgery 2 weeks after it started. I was in hospital a total of 2 months due to complications from the surgery, and I had to have 3 more surgeries after and I was even in 2 comas from septic shock (one after the first surgery, one after the third). I lost all my bodyweight/musclemass/etc. I dropped out of university and moved home with my mother for a year to recover.
During that year, I didn't do much. I bought a playstation, I slept a lot, I applied to university again (this time in a different place) and prepared to go.
I've been at university for a month now, and It's going well. But there's a girl I really like, and she likes me. We haven't really done much aside from kissing because I am so nervous about the bag (ileostomy bag). First of all, I haven't had sex since before the surgery, over a year ago. I've never shown my scar-ridden and ostomised body to a partner. And while she knows I was sick last year, she doesn't know about the bag.
I've thought about buying some lingere that semi-covers my abdomen (I'm a woman, too) and other things to help when I finally do have sex, but before I can even think about that I have to tell her and see how she feels about it. But then I realised I have absolutely no idea how to do that.
How do I even begin? I don't know what I would even say. A couple days ago she almost took my shirt off and I flinched so she didn't. We sort of talked and I told her I had something to tell her but wasn't ready to yet. I want to soon... I just don't know how.
Any advice?
Thanks
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2017.03.05 18:27 hotmess73 Confidence issues with surgical scarring affecting my crohns partners sex drive.

Some history. My partner of 12 years had a temp ileostomy in 2006/7 which was reversed in 2010. We've since had 3 children the eldest of which was conceived while he still had the stoma.
I've admittedly been in mom mode ever since and only recently have noticed that it's always me that instigates sex. And I mean always. Only ever me. It wasn't like this before he was diagnosed.
We had a talk and he finally admitted that he has severe confidence issues regarding his abdominal scarring. On my part I rarely touch him there because I know how self conscious he is and there's often the discomfort or sensitivity associated. But I love him and I want us to be able to enjoy an active sex life, even if it isn't as regular as I'd like.
Can anyone else relate (partners of crohnies in particular) or offer advice how else I can possibly help him understand that I really don't care about the scars, I'm just happy he's still around and relatively healthy.
Thanks in advance for your support.
submitted by hotmess73 to CrohnsDisease [link] [comments]


Sleeping with an Ostomy, with Shield HealthCare's Ostomy ... FSK - Ostomy homecare Ostomy & Dating  Coloplast & Vanilla Blush Stoma Nedir ? Kolostomi ve İleostomi Nedir ? Stoma Çıkışı ve Ürostomi Chloe Moody - Intimacy w/ an Ostomy (Q&A) How to change your ostomy bag - YouTube . The Bone Collector (1999) - An Old turn of the century Publisher's Logo

Caring for an Ileostomy American Cancer Society

  1. Sleeping with an Ostomy, with Shield HealthCare's Ostomy ...
  2. FSK - Ostomy homecare
  3. Ostomy & Dating Coloplast & Vanilla Blush
  4. Stoma Nedir ? Kolostomi ve İleostomi Nedir ? Stoma Çıkışı ve Ürostomi
  5. Chloe Moody - Intimacy w/ an Ostomy (Q&A)
  6. How to change your ostomy bag - YouTube
  7. .
  8. The Bone Collector (1999) - An Old turn of the century Publisher's Logo

A quadriplegic ex-homicide detective and his partner try to track down a serial killer who is terrorizing New York City. Patient Coach, Chloe Moody, is here to talk about a topic that many of you may be interested in hearing about. Intimacy with an ostomy! Many ostomates can be... İleostomi Nedir - Nasıl Bakım Yapılır? ... Kolon Rektum 65,869 views. 5:27. Support Tips for Birth Partners for an Empowered Birth Phases of Labor and Delivery Birth Doula - Duration: 21:04. Wondering how to tell a new partner about your ostomy? Hear what these ostomates have to say about their experiences with dating. Every day's a Valentine's D... Changing my ileostomy, if you have any questions post below and I'll do my best to answer them! :) While sleeping with an ostomy can be a little bit more difficult than one may anticipate, there are several tips and tricks that can get you much closer to a... Beyond the delivery of your material of ostomy, FSK is the partner who supports you, makes your life easier and is present everyday to advise you on the use of your medical device. The best sleeping position for back pain, neck pain, and sciatica - Tips from a physical therapist - Duration: 12:15. Tone and Tighten Recommended for you